About Parkinson's

Understanding the condition and finding your path forward.

Parkinson's is a progressive neurological condition that affects movement, but it's much more than that.

Everyone's experience is unique, and whilst there's currently no cure, there are many treatments and strategies that can help you live well. Understanding Parkinson's is the first step in taking control of your journey.

What is Parkinson's?

Watch this short video from Parkinson's UK for a clear introduction:

1-minute overview explaining the basics of Parkinson's

Parkinson's develops when nerve cells in the brain that produce dopamine become impaired or die. Dopamine is a chemical that helps control movement and coordination. When dopamine levels drop, it causes the movement symptoms associated with Parkinson's.

The condition is named after James Parkinson, who first described it in 1817. Today, around 153,000 people in the UK live with Parkinson's, and it's the fastest growing neurological condition in the world.

Recognising the Symptoms

Parkinson's affects everyone differently. You may experience some of these symptoms but not others, and they can vary from day to day.

Motor Symptoms (Movement-Related)

  • Tremor - Often starting in one hand, typically when resting

  • Slowness of movement (Bradykinesia) - Tasks may take longer than before

  • Muscle stiffness (Rigidity) - Muscles feel tight and inflexible

  • Balance problems - Difficulty with posture and stability

Non-Motor Symptoms

  • Fatigue - Extreme tiredness not relieved by rest

  • Sleep difficulties - Problems falling asleep or staying asleep

  • Mood changes - Including anxiety and depression

  • Cognitive changes - Issues with memory or concentration

  • Pain - Muscle cramps or general discomfort

  • Constipation - A very common early symptom

  • Loss of smell - Often occurs years before diagnosis

Remember: Having one or two of these symptoms doesn't mean you have Parkinson's. If you're concerned, speak to your GP.

Living Well with Parkinson's

A Parkinson's diagnosis doesn't mean giving up on life. Many people with Parkinson's lead full, active lives for years after diagnosis. Here's what can help:

Stay Active

Regular exercise is one of the best things you can do. It helps with:

  • Maintaining mobility and balance
  • Managing symptoms
  • Improving mood and sleep
  • uilding strength and flexibility

Join our exercise classes or singing group!

Medication Management

Various medications can help manage symptoms:

  • Work closely with your specialist
  • Take medications on time
  • Keep a symptom diary
  • Ask about adjustments

Emotional Wellbeing

  • Connect with others who understand
  • Consider counselling if needed
  • Practice stress management
  • Maintain social connections

Practical Adaptations

  • Simple home modifications
  • Occupational therapy strategies
  • Assistive devices if needed
  • Plan around your best times

Treatment and Therapies

While there's no cure yet, many treatments can help manage symptoms effectively:

Medications

Levodopa

The most effective medication for motor symptoms

Dopamine agonists

Mimic dopamine in the brain

MAO-B inhibitors

Help dopamine last longer

Other medications

For specific symptoms

Therapies

Physiotherapy

For movement, balance and posture

Speech & language therapy

For communication and swallowing

Occupational therapy

For daily living strategies

Psychological support

For emotional wellbeing

Advanced Treatments

Regular exercise is one of the best things you can do. It helps with:

  • Deep Brain Stimulation (DBS) - For suitable candidates

  • Continuous dopaminergic therapies - Pumps and patches

  • Clinical trials - Ask your specialist about research opportunities

Understanding Progression

Parkinson's progresses differently for everyone. Some people may have mild symptoms for many years, while others may progress more quickly. There's no way to predict individual progression.

What to Remember:

  • Progression is usually gradual

  • Symptoms can fluctuate day to day

  • "On" and "off" periods may develop over time

  • Each person's journey is unique

  • Good management can slow progression

Focus on what you can do today rather than worrying about the future. Many people live with Parkinson's for decades.

Research and Future Hope

Research into Parkinson's is advancing rapidly. Scientists are working on:

Medications

Better treatments

More effective medications with fewer side effects

Neuroprotective therapies

To slow or stop progression

Earlier diagnosis

Including smell tests and biomarkers

Understanding causes

Genetic and environmental factors

Potential cure

Several promising approaches in development

Parkinson's UK is the largest charitable funder of Parkinson's research in Europe. Your support helps fund vital research projects.

You're Not Alone

Local Support

  • Join our branch's activities

  • Connect with others at our Drop-in Café

  • Access expert advice through our committee members

  • Participate in our exercise and singing groups

Professional Support

  • Parkinson's nurses - Specialise in managing the condition

  • Neurologists - Medical specialists for treatment

  • GP - Your first point of contact for concerns

  • Parkinson's UK Helpline - 0808 800 0303

Online Resources

  • Parkinson's UK website - Comprehensive information

  • Online forums and communities

  • Webinars and educational videos

  • Latest research updates

Common Questions

Is Parkinson's hereditary?

Most cases aren't directly inherited. Only about 10% have a clear genetic cause.

Can young people get Parkinson's?

Yes, though it's less common. Young-onset Parkinson's affects people under 50.

Will I need a wheelchair?

Many people with Parkinson's never need a wheelchair. Staying active helps maintain mobility.

Can I still drive?

Many people continue driving safely. You must inform the DVLA and your insurance company.

Is there a special diet?

No specific diet, but eating well helps overall health. Some find protein affects medication timing.

Remember:

A Parkinson's diagnosis is not the end of your story - it's the beginning of a new chapter. With the right support, treatment, and attitude, you can continue to live a fulfilling life. We're here to support you every step of the way.

Contact us: